Who we are
Board of Directors
Jola Gore Booth
Jola’s association with patient advocacy begun when in 1996 she was appointed CEO of Colon Cancer Concern (now Bowel Cancer UK) prior to which she worked as a fundraiser at Trinity Hospice in the UK. Whilst at CCC Jola launched bowel Cancer Awareness Month (BCAM); she formed the Bowel Cancer Forum; participated in the UK Government’s Bowel Cancer Advisory board; sat on NICE’s Implementation Advisory Board achieving notable success on patient access to treatment.
In 2004 she launched and became the CEO of EuropaColon – the first pan European Not for Profit CRC patient advocacy organisation. Jola believed strongly in the importance of collaboration and creating Europe wide CRC communities. This grew to embrace 30 European countries and in 2018 expanded into Digestive Cancers Europe (DiCE), to include all gastrointestinal cancers. Jola stood down from the Board in 2021 to pursue new challenges she continues to support DiCE in whatever way needed.
Over the years she launched many initiatives and projects; sat on numerous committees; made countless presentations across Europe and further; engaged with Commissioners, Health Ministers. However her primary focus was on behalf of CRC patients and the promotion and importance of primary and secondary prevention. She launched European Colorectal Cancer Awareness Month (ECCAM in 2018.
2007 Jola set up Inflatable Body Organs to design and produce the first inflatable walk through Colon/Bowel to raise awareness on the Risks, Signs and Symptoms of CRC. She has also built an inflatable breast, brain and alimentary adventure. She is currently working on a new inflatable and roadshow to educate 8 to 11 year olds on what happens to food when it goes in your mouth and how it affects their health now and in the future.
2021 Jola took the decision to use and expand her skills and set up a new Not for Profit - Global Healthcare Projects. The aim is to campaign for equal access to good healthcare; address health inequalities and gaps in NCDs in disengaged communities; support Informal Carers and encourage young adults to become more aware of their Gut Health.
Charles Mills
Educated at Cambridge and Harvard Universities, Charles is a highly experienced communicator and brand strategist. He was Head of Marketing at the V&A Museum and then the Royal Horticultural Society before spending 10 years leading the digital and corporate communications division of the TV company, Twofour.
Here he worked on brand narratives and content for (among others) The British Heart Foundation, Number 10 Downing Street, GSK and the Ministry of Defence.
As CEO of the creative agency, Denhams Digital, he currently leads on major branding and content projects with (among others) AXA PPP Healthcare, Cambridge University, the NHS and the Ministry of Defence.
He was, until recently, a Trustee of the National Youth Agency.
Geoffrey Henning
Geoffrey began working in the NGO sector in 1985 when he co-founded CRUSAID, a national HIV fundraising charity, and was appointed Director in 1987. When he left 10 years later the charity had raised £11m for HIV related causes in the UK.
He joined Roche UK in 1998 to support the HIV and later the Hepatitis C teams and worked closely with patient groups in these areas for 5 years. He was then appointed Policy Manager for Oncology covering the extensive oncology portfolio. Once more he worked closely with the relevant patient groups until his departure 7 years later.
He joined EuropaColon in 2011, initially as Policy Director and then helped co-ordinate the emerging Digestive Cancers work programme as the NGO expands into the wider digestive cancer arena.
He now lives and works free-lance in Portugal.
Partners
Dr Rose Thompson
Our work continues in loving memory of Dr Thompson.